Tuesday, March 31, 2015

Creating awareness...

Hey everyone. Today I wanted to share my experience with a blood disease I have called Cryoglobulinema Vasculitis. It is one that not many people know about. I know I had no idea what it was until the doc took a biopsy and found out.

This is a vascular disease and there are a couple different kinds. Mine specifically is one that attacks the small vessels of my legs. Cryo is caused by a presence of abnormal proteins in the blood and when we get cold the proteins become like gel. Which as you can guess is not a good thing. So it is really important for people like me that have cryo to always stay warm. I know that I get cold very easily and when I do my hands, legs, and feel will often go numb or start tingling.

The flare up that you see in the pictures is a typical reaction. Everyone is different in what sets off a flare up. I am still trying to figure mine out, so far I have found that if I stand or sit for long periods of time it seems to be a problem. Also alcohol usually causes me to flare up pretty bad. The pictures are from what my legs look like right now, I am not sure what caused this flare. It can be really painful and the skin is very sensitive. I have had both of my legs covered in these red patches and that is when it's the worst.

I am still trying to find a good way to manage my cryo, but it is hard because there is not much out there to help us. I am currently using essential oils thanks to my Sis in law Becky! They seems to be working pretty well. I also take a warm/hot bath as soon as I can and it helps to sooth the pain and reduce inflammation. Other than that it's pain pills and heating pads ha ha! If you want more information on Cryo please go check out the website at the bottom of the page, and even if you don't want to know more go check it out anyway! As always thank you for reading this and supporting me! I love you guys!

Until next time....


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